Spina Bifida Clinic

Multi-specialty care for people of all ages with spina bifida and spinal cord conditions

DMG Children’s Rehabilitative Services’ (DMG CRS) Spina Bifida Clinic is designated as a Spina Bifida Association Clinical Care Partner meeting ten standards established by the Spina Bifida Association for providing care to patients. Through our Spina Bifida Clinic, we support patients of all ages with spinal cord conditions such as spina bifida, myelomeningocele (a severe type of spina bifida) and caudal regression syndrome.

The multi-specialty team of experts supporting our Spina Bifida Clinic includes:

Our Spina Bifida Clinic includes three programs to meet the unique needs of patients.

Pediatric Spina Bifida Clinic

During our full-day pediatric spina bifida clinic, patients and their families meet with DMG CRS experts in caring for individuals with spina bifida and other spinal cord abnormalities. These experts represent various medical specialties and support services and will answer questions, provide education, help identify needed resources, and discuss current research opportunities, if available.

DMG CRS provides lunch and encourages families to socialize and network with each other and our care team. Community resources are also available during the clinic.

Transition Spina Bifida Clinic

Once a month, DMG CRS offers a transition clinic for teens and young adults ages 14-21 years old with spina bifida. In this clinic, we focus on assisting individuals and their families move towards independence as able, develop goals for self-care and independence, and provide community resource recommendations that can be beneficial as you and your family move from the pediatric healthcare system to the adult healthcare system. Following national guidelines for transition, we help you get established with a primary care provider (PCP) and medical specialists who care for adults. We also facilitate parent and patient groups separately so the teens, young adults and parents can learn from each other.

Adult Spina Bifida Clinic

In 2018, DMG CRS established the first adult spina bifida clinic in Arizona to continue providing interdisciplinary care to our patients as they become adults as well as other adults with spina bifida in Arizona. This clinic meets monthly and provides integrated care for adults with spina bifida and other spinal cord conditions. Our multi-specialty team of physicians and support services are available during this clinic to assist you with specific needs and questions.

Centers for Disease Control and Prevention (CDC) National Spina Bifida Patient Registry

DMG CRS is committed to spina bifida research and care. That’s why we participate in the CDC National Spina Bifida Patient Registry which collects clinical data needed to evaluate existing medical services for spina bifida patients in clinics like ours across the nation. The Registry provides valuable research for healthcare professionals and families affected by spina bifida and the framework for a systematic approach to improving the quality of care received at spina bifida clinics nationwide.